Breathing & Sleep Symposium

About the Symposium

People with neuromuscular conditions often encounter difficulties seeking and obtaining proper respiratory care. Too often, primary care physicians, neurologists, and respiratory care professionals treat their respiratory problems as a lung issue, rather than as a muscle/nerve problem. And too often, sleep labs look only for obstructive sleep apnea and miss underventilation.

Objectives

• How motor neuron conditions affect respiratory muscles
• How breathing is affected when respiratory muscles are compromised
• How breathing and sleep problems differ in post-polio syndrome, ALS, muscular dystrophy and MS
• Which tests identify specific breathing and sleep problems
• How to remove secretions and prevent pneumonias
• What ventilator and what interface is appropriate for YOU
• How using the right ventilator in combination with the right interface can significantly impact the quality and length of life.

Planning Committee

Judith Fischer, MSLS
International Ventilator Users Network (IVUN)

Gladys Swensrud
Co-Facilitator/San Diego Polio Survivors

Rick Van Der Linden
PPS Manager

Exhibitors

Amyotrophic Lateral Sclerosis Association
CpapRx
ElectroMed
Hill-Rom
Home Respiratory Care
IVUN
Muscular Dystrophy Association
National Multiple Sclerosis Society, Pacific South Coast Chapter
Newport Medical Inc.
Parkinson's Disease Association
Philips Respironics
Southern California Polio Survivor Groups
Progressive Medical
ResMed Corporation

Presenters

Louis J. Boitano, MS, RRT, RPFT
Northwest Assisted Breathing Center
University of Washington Medical Center Seattle, Washington

Diana Guth, BA, RRT
Founder, Home Respiratory Care
Los Angeles, California

Helen Kent, BS, RRT
Founder, Progressive Medical
Carlsbad, California

Noah Lechtzin, MD, MHS, FCCP
Pulmonary and Critical Care Medicine
Assistant Professor of Medicine
Johns Hopkins University School of Medicine
Baltimore, Maryland

Geoffrey Sheean, MBBS, FRACP
Clinical Professor of Neurosciences
University of California, San Diego
Director, Neuromuscular Division
San Diego, California

Program

11:30 am - Noon	Optional Guided Tour or Seated Lecture of the Salk Institute
Noon - 12:30 pm	Registration
12:30 - 12:45pm	Rebecca Newman Salk Institute, Vice President of Development Welcome
12:45 - 1:15 pm	Geoffrey Sheean, MBBS Respiratory Muscle Weakness in Neuromuscular Conditions: Mechanisms, Symptoms, and Pulmonary Function Testing
1:15 - 2:30 pm	Noah Lechtzin, MD Breathing and Sleep: What's My Problem? What Tests Do I Need?
2:30 - 3:00 pm	Break and Exhibits
3:00 - 4:15 pm	Noah Lechtzin, MD and Louie Boitano, RRT Solutions to My Breathing and Sleep Problems: Finding the Right Ventilator and Interface
4:15 - 5:00 pm	Diana Guth, RRT and Helen Kent, RRT Hands-on with Ventilators and Masks Louie Boitano, RRT Mouthpiece Ventilation Demo

Registration

Admission to this symposium is FREE of charge to the public. Registration includes coffee/tea during the scheduled break.
Register by October 28, 2009.

You may register online for Breathing & Sleep. Fill out the form below and submit your information.

OR

Download and mail in your registration to:
San Diego Polio Survivors
8176 Calle Nueva,
San Diego, CA 92126
For Questions call Gladys Swensrud at
858.271.9288 or e-mail swensrud@pacbell.net.